|
|
|
|
Guestbook
CommentsHello uncle Nathan this website is very informative. People should show there appreciation to you by signing this guestbook. I believe the website will help a lot of people and introduce new patients to your group. Good luck xx
CommentsVery impressive. I am sure this will be helpful to anyone affected by lymphoma, and I hope it encourages people to go along to the Coventry group.
CommentsMy friend is Alese Coco www.alesecoco.org. She had reccurance and wasnt given long to live, her family took her to Sloan Kettering in New York, I think her Dr is Dr. O'Oconner. Anyway she is doing great, and did not have to lose her hair or go through chemo. She is on a protein something??? that is working and taking away her cancer. I just wanted to spread the hope for anyone who has had a relapse. She is a really nice person if any of you want to talk to her just email her from her web site. peace out Sara
CommentsHi all, My daughter is Alese Coco, and yes she is having great success at Sloan Kettering New York, She has Hodgkins and first got it age 17yrs. and has had it come back twice. She is doing a clinical trial and is going to make it with flying colors. If any of you are going through this please visit her website and contact us, we would love to be of any help in anyway we can. www.alesecoco.org God Bless you all, Kathy.
Commentsexcellent website, a credit to all of the hard work that has been put in. excellent horse jump pics!!!xxxxxxx
CommentsHello My name is Moira Cullimore, my partner Bob Oliver has been recently been diagnosed with Non Hodgkin's Lymphoma. He has had 4 sessions of chemo & is now feeling much better. In two weeks time we will have the results of his latest scan. I hope sometime to be able to attend your support group meetings. I will check your website for further details. It's nice to know you are out there!
CommentsOur daughter was diagnosed with Hodgkins Stage 4B in June. She has gone thru Standford V, ICE & now Gemictibane treatment. We are so scared. She is getting treated at Northwestern University in Chgo, IL. She was slated for a transplant this week & they called it off because she has refractory Hodgkins & they want to get her closer to remission before her transplant. I can't sleep - walk around in a fog & think the worse of couse. Pleae give me some encourgment - everytime the dr.s come in just bad news. Thanks, Gloria Teuber
CommentsI feel for all the people who come to this website, for insite to their future. I only hope for the best for everone with a lymphoma. I am lucky. I am 29 with 6 years remission....lucky boy, but i need some info about babies!!!!! I married the women of my dreams six months ago and we want to build a family. I have sperm stored, but my GP,Specialist arnt giveing me much info. I would like a forum for us to talk about. What is needed from us, where do we go from here, to be honest I am scared about this. Just some info from someone in my position would be amazing. To everyone with a form of lymphmoma............if you can kick its ass.......life does get better. Its easy for me having had the illness and got through it but as long as you are strong.........well who knows!!! keeep fighting and if anyone is in a position I am I would appreciate a response. Love you all Rob x
CommentsIs funny that Kev is planning to do a parachute jump cos I have also thought of doing one as well. Do you know of he is going through this specific charity or is he doing the jump privately and then getting sponsorship?? Am hoping to do it before Australia so just 7 or so months now!! Response by the Webmaster The Lymphoma Association has an arrangement with a firm that specialises in charity jumps. They had hoped we could arrange something for April, but this is too short notice for Kev, Nathan and his colleagues. Maybe you could join us all later in the year.
I will be running the 'Race for Life' on 7th June and am planning to spilt the proceeds between 'cancer reaesrch' and the lymphoma association. If I manage to raise my planned amount, i would also love to extend this to the macmillon nurses as I am aware of the amazing work that they have done for my family. I have chosen to run this race in the memory of my beautiful cousin Micheala. I know that both Ki and Nathan have recieved so much help and support from the association and want in any way I can to be able to give something back so that this can be continued.
Hello. I hope this is helpful. I was treated for Hodgkins 1981 through 1982. Actually, I had the disease for 2 1/2 years prior to diagnosis in 1981. Treatment was very different 25+ years ago. The same month that my third child was born, I was notified of a probable recurrence. I had what they term a "Very Late Recurrence" in 2006. Stage IIA. I was treated for 6 months. Went into remission in November 2006. Last Treatment December 13, 2006. PET/CT on January 9, 2007...Second recurrence. I have twin 3 year olds and my youngest is now 1 year old. Still feeling strong. I'm not afraid. By the way, keep your medical records forever. The hospitals might not. They will need it if you have a recurrence. Best to all. You can beat this.
My name is Virginia, I´m 28 years old and I live in Montevideo, Uruguay, South
America. I finished my treatment for a HL a year ago (March 2006).
My e-mail is
uruguay.grupolinfoma@gmail.com
CONGRATULATIONS for the wonderful website!!
You are doing a fantastic job!!!
Greetings from Uruguay!!!!
Virgi x x x x x
Dear Friends and Family:
As many of you know, I have been blessed with a little bout of cancer
(Hodgkin's Disease.) I hope to be a good example to others as I address these
issues.
To that end, I have started a personal web page. I hope that it will assist
in keeping you apprised. Also, I hope that you will be able to use it to
encourage others who are having difficult times in their lives. This includes
others with cancer and their families, but others also.
I have designed the page in a manner so as to show that even with adversity,
this is the life that we are given. You get no more. So, make the most of
it! For that reason, you see discussions about Hodgkin's, lots of life
stories, journal entries, and devotions that I hope to update regularly.
It is mostly, but not fully, functional now. It should be fully functional
very soon.
The address is:
www.paintyourmoment.com
Hope you get a chance to stop by and read it.
As ever, thank you for your support.
JDS
|
|
Coventry Lymphoma Association Support
Group. Thursday February 28, 2008 Sponsor me please - click here This site is dedicated to the memory of Michaela Reynolds 8 October 1972 to 7 April 2006
|